Join a study

Join a Study

Would you like to help:

Build a registry for patients with nephrotic syndrome?
Identify differences in treatment for children/youth with nephrotic syndrome between different nephrology centers across Canada?
Assist us to develop strategies to optimize our care to patients?
To provide samples for a pediatric nephrotic syndrome biobank (blood, urine, saliva), which will drive future biomedical research in nephrotic syndrome?

If you have a child (or children) between the ages of 1 and 18, diagnosed with nephrotic syndrome at a pediatrics nephrology clinic and are interested in participating, please contact your study coordinator found here.

What's next?

We will ask for your consent to:

collect your child and family demographic information
Record treatments he/she will receive for nephrotic syndrome
Assess him/her by a pediatric nephrologist at pre-defined study visits (6 monthly intervals)
All examinations are with the scope of routine clinical care
You may need to come with your child into the nephrology clinic examinations done by the study personnel or you can choose to be examined by his/her family physician if it is not feasible to return to clinic