Join a study

Join a Study

Would you like to help:

  • Build a registry for patients with nephrotic syndrome?

  • Identify differences in treatment for children/youth with nephrotic syndrome between different nephrology centers across Canada?

  • Assist us to develop strategies to optimize our care to patients?

  • To provide samples for a pediatric nephrotic syndrome biobank (blood, urine, saliva), which will drive future biomedical research in nephrotic syndrome?

 

 

If you have a child (or children) between the ages of 1 and 18, diagnosed with nephrotic syndrome at a pediatrics nephrology clinic and are interested in participating, please contact your study coordinator found here.

What's next?

We will ask for your consent to:​

  • collect your child and family demographic information

  • Record treatments he/she will receive for nephrotic syndrome

  • Assess him/her by a pediatric nephrologist at pre-defined study visits (6 monthly intervals)

  • All examinations are with the scope of routine clinical care

  • You may need to come with your child into the nephrology clinic examinations done by the study personnel or you can choose to be examined by his/her family physician if it is not feasible to return to clinic